Connecting Health Systems for Kids – #ChildHealthCan2019 Conference

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Join child health leaders from coast to coast in Ottawa, Ontario, December 8-10, 2019 for Children’s Healthcare Canada’s flagship conference.

Preliminary program: https://conference.childrenshealthcarecanada.ca/preliminary-program

Registration: https://www.eventsquid.com/contestant-reg.cfm?event_id=6855

Our main stage will feature local, Canadian and International child health leaders and advocates including Dr. Zayna Khayat (SE Health), André Picard (Globe & Mail), Alex Munter (CHEO), Julie Drury (Minister’s Patient and Family Advisory Council) and more!

Building on the Brave Ideas and Fresh Thinking from our conference in 2018, we are continuing to modernize our event under our new Children’s Healthcare Canada brand. With the theme Connecting Health Systems for Kids we are thrilled to launch this years program featuring content from members across Canada and across the continuum of care.

Along with our new brand and mission of transformation we have included those essential program items that are well attended and valued by our delegates and make our event one you don’t want to miss.

  • Hospital Tours: Tour our host organization, CHEO, and find out what new and innovative programs they have implemented.
  • Attended Poster Fair: This event has grown into one of the premier sessions at our annual meeting, providing an ideal venue to showcase and view innovative research, exciting programs and unique strategies taking place in the area of child and youth health.
  • Networking Opportunities: Catch up with colleagues from across Canada, or forge new connections at any of the networking breaks, meals, or receptions we are hosting throughout the event.
  • Concurrent Sessions: Two blocks of concurrent sessions allow you to tailor your experience and bring home the information you need for your day to day work.

Last but not least, don’t miss out on our Monday evening social event! Take in the breathtaking views of Parliament, the Chateau Laurier, and the twinkling lights in Ottawa’s downtown core from one of our premiere venues, the National Arts Centre. With great music, food, and company, this is a night you won’t want to miss. Get your ticket today!

Solutions for Kids In Pain (SKIP) newsletter available now in both English and French

Read the first e-newsletter “In the Loop” for Solutions for Kids in Pain (SKIP) that went live today – available in both English and French. http://ow.ly/T7aO50x6j4W

Solutions for Kids In Pain (SKIP) is looking for patient partners (patients, caregivers, family, siblings, friends) who have lived experience with kids in pain

SKIP is a national knowledge mobilization network whose mission is to improve children’s pain management by mobilizing evidence-based solutions through coordination and collaboration.

SKIP believes in meaningful inclusion and engagement of patient partners. “Patient partner” is an overarching term that includes individuals with lived experience with pain, including patients, caregivers, family, and friends.

SKIP is enrolling patient partners to match to our various network activities and opportunities. Compensation will be provided and disability requirements will be accommodated.

More info at: http://ow.ly/VKwN50x6kPV

A tweet appropriate for sharing: https://twitter.com/KidsInPain/status/1192935186834640902?s=20 

SKIP has made posts on all their social media platforms that can be shared (@KidsInPain); SKIP is happy to provide you with newsletter text/images as well if that would be helpful.

The Pediatric Hem/Onc group in Newfoundland is looking for weekly locum coverage over the next 2-3 months. The cost of licensing, travel and housing will be provided in addition to the locum salary.

The Pediatric Hem/Onc group in Newfoundland is looking for weekly locum coverage over the next 2-3 months. The cost of licensing, travel and housing will be provided in addition to the locum salary.

Anyone who might be interested in coming for a week or more, or if you would like more information, please contact Lynette Bowes at lynette.bowes@easternhealth.ca

Framework for the care and support for adolescents and young adults with cancer | Cadre sur les soins et le soutien aux adolescents et aux jeunes adultes atteints de cancer (released 16-Oct-2019)

Link containing this letter for circulation within your institution: http://links.partnershipagainstcancer.ca/m/1/17750443/02-b19294-25962202298b4c9ab80b61f12057123e/1/26/14e13af6-a9c5-4623-b34b-91124b1e99d7

Key documents and resources:


Dear Colleagues,

On behalf of the Canadian Partnership Against Cancer, I want to take this opportunity to thank the AYA National Network (AYA NN) for contributing their time, effort and expertise towards the development and release of the Canadian Framework for the Care and Support of Adolescents and Young Adults with Cancer. Our collective vision is that all AYAs with cancer in Canada receive optimal, developmentally appropriate care and comprehensive survivorship support that lead to improved outcomes and high-quality life.

The Framework was developed in collaboration with the AYA NN, as well as input from international and national leaders and experts in cancer and in consultation with AYAs and their families. The Framework is available for download in English and French at the links above.

Over the coming years, we hope that the Framework will inspire future policy direction, investment and action to ensure Canada can meet new challenges in an evolving healthcare landscape, so that every young Canadian with cancer has access to the best practice and support they need to optimize their health, well-being and survival, and that it will facilitate meaningful participation across all aspects of life.

Implementation of the Framework requires leadership across Canada. Please help us share the Framework with as many people as possible, to mobilize our partners to action. Consider how you can champion the actions within the Framework at the individual, service and system level.

We have developed a variety of tools that we will continue to refine and post with the Framework online (available at links above):

  • The Framework at a glance as a one page PDF
  • A PDF document that summaries of the four strategic priorities and the four enabling platforms
  • A brief and editable PPT slide presentation which contains key components of the Framework that can be edited/ customized for use

The actions within the Framework are intentionally broad so that your individual jurisdictions or organizations have flexibility to adapt your approach according to local context and systems capacity. The Framework is intended to complement and enhance national and local efforts, including related regional cancer plans and policies that improve outcomes for AYAs both in terms of the disease itself and the broader psychosocial and mental health and social challenges faced during care and survivorship.

Again, thank you for your leadership.

With gratitude,

Paul Grundy

Chair, Adolescents and Young Adults National Network (AYA NN)

3CTN annual report

The 3CTN 2018/19 annual report can be downloaded from https://3ctn.ca/files/public/3CTN-Annual-Report.pdf

Pediatric specific information can be found on pages 2 and 6. Other topics include:

  • future 3CTN priorities
  • impact assessment
  • site specific data for those sites participating in 3CTN
  • patient involvement
  • financial reporting

Writing a grant that incorporates patient involvement? Check-out the Patient-Oriented Research Level of Engagement Tool (marking rubric) generated by the Saskatchewan Centre for Patient-Oriented Research (SCPOR).

Download the SCPOR Patient-Oriented Research Level of Engagement Tool (PORLET) at: https://www.scpor.ca/porlet

The SCPOR Patient-Oriented Research Level of Engagement Tool measures the degree to which a project meets the definition of patient-oriented
research described by the CIHR Strategy for Patient-Oriented Research (SPOR). The tool utilizes five criteria which have been adopted from SPOR
published documents. These criteria are:

  • patients are partners,
  • patient identified priorities,
  • outcomes important to patients,
  • team is multidisciplinary,
  • and aims to integrate knowledge into practice.

The rubric breaks each of these five criteria into a marking scale of 1-5 and give descriptions for each score, allowing the researcher (or grant reviewer) to assess the level of patient-orientated research described in the grant.

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Submit your abstract to the CADTH Symposium by Oct-25. Decision-Making in an Age of Uncertainty (Apr 19-21, Toronto) — the “must attend” event for anyone interested in the assessment, uptake, and management of drugs and medical devices in Canada.

Additional information, presentation formats and application information available at: https://symposium.cadth.ca/call-for-abstract/

Note: Travel awards available for patient representatives, undergraduate students and graduate students.

The 2020 CADTH Symposium will be held at the Sheraton Centre Toronto Hotel in Toronto, Ontario from April 19 to 21, 2020. The theme is Decision-Making in an Age of Uncertainty. Topics relevant to this theme include, but are not limited to:

  • methods to address uncertainty
  • disinvestment
  • innovative payment schemes
  • decision-making by patients, clinicians, and policy-makers
  • implementation issues
  • managing uncertainty.

The CADTH Symposium is widely considered a “must attend” event for anyone with an interest in the assessment, uptake, and management of drugs and medical devices in Canada. The CADTH Symposium typically attracts 750 to 900 delegates from across Canada and beyond, including health researchers; health economists; senior leaders from government, regional health authorities, hospitals, and other facilities; clinicians and patients; students; and industry representatives. With the Symposium in 2020 being held in Toronto for the very first time, we are anticipating 1,000 to 1,200 delegates. As one of the major health technology assessment conferences in the world, the CADTH Symposium offers a unique opportunity for delegates to learn from local, national, and international experts, and to share expertise and knowledge.

Who Should Submit an Abstract?

Presentations from all interested parties are welcome. These include:

  • federal, provincial, and territorial health care policy-makers and decision-makers, economists, and regulators
  • health care executives and managers from health regions, alliances, hospitals, and long-term care facilities
  • researchers (from non-profit organizations, universities, regional health authorities, hospitals, and other settings)
  • health economists
  • knowledge transfer and exchange professionals
  • clinicians
  • representatives from the pharmaceutical and medical devices industries, and consultants
  • health care associations and patient groups
  • professional associations
  • graduate and undergraduate students studying in a health- or health technology assessment-related field.

Symposium Objectives

The objectives of the 2020 CADTH Symposium are to:

  • provide a forum for productive discussion between parties committed to the use of evidence-based information and advice to inform policy, influence practice, and improve health
  • provide education and training that will build the capacity to produce and use evidence-based information on drugs and other health technologies
  • foster a better understanding about the perspectives of different health care system sectors and the challenges they face, and to jointly look for solutions and new approaches that will enhance the quality and sustainability of health care in Canada.

Deadline

Abstracts must be received by 5 p.m. EDT on Friday, October 25, 2019.
Questions may be sent by email to symposium@cadth.ca