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Would you like to understand why families decline participation in clinical trials? Read this press release to learn more about the BCCRIN anonymous survey for patients/families who have declined or participated in clinical trials.

 

Clinical researchers would like to learn about Canadian’s experience with clinical trials.

The Canadian Clinical Trials Coordinating Centre (CCTCC) is pleased to partner with the BC Clinical Research Infrastructure Network (BCCRIN) on the national expansion of the BC Clinical Trials Participation Survey. This survey recognizes the importance of engaging and learning from patients and the public about the clinical trial process. From the BC only data, researcher have found that patients/families that decline participation in clinical trials have a very different understanding of the clinical trial process than those that participated in a clinical trial.

Access the full press release here.

If you have participated in a clinical trial, were asked to participate and declined, or if you are the parent of a child who has been asked or has participated, your feedback is important to the future of research in Canada.

The anonymous survey can be accessed at: www.bccrin.ca/survey

C17 addendum: please note this survey does not appear to work in older browsers.

Canadian Clinical Trials Asset Map: released on June 4 and featured in CMAJ

The Canadian Clinical Trials Asset Map (CCTAM) was recently featured in an article by the Canadian Medical Association Journal (CMAJ). You can access the article here.  The CCTAM website went live June 4 with over 800 database records, and it is expected to grow. The map provides information on conditions and diseases being studied, and identifies gaps.  www.base.cctam.ca

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The Canadian Clinical Trials Coordinating Centre was created to implement an action plan to strengthen and improve clinical trials in Canada and streamline processes for companies and researchers.

Developed through extensive stakeholder consultation, the action plan includes nine key recommendations to improve the coordination of clinical trials in Canada, increase participation in trials, and strategically raise Canada’s profile among international companies. Those recommendations are summarized in the report “To Your Health and Prosperity – An Action Plan to Help Attract More Clinical Trials to Canada.”

The CCTCC is a collaborative effort of the Canadian Institutes of Health Research (CIHR), Canada’s Research-Based Pharmaceutical Companies (Rx&D), and HealthCareCAN.