Framework for the care and support for adolescents and young adults with cancer | Cadre sur les soins et le soutien aux adolescents et aux jeunes adultes atteints de cancer (released 16-Oct-2019)
Link containing this letter for circulation within your institution: http://links.partnershipagainstcancer.ca/m/1/17750443/02-b19294-25962202298b4c9ab80b61f12057123e/1/26/14e13af6-a9c5-4623-b34b-91124b1e99d7
Key documents and resources:
- English website with links to associated PDF and PPT resources https://www.partnershipagainstcancer.ca/topics/framework-adolescents-young-adults/
- Full framework document in English: https://s22457.pcdn.co/wp-content/uploads/2019/10/AYA-Framework-2019-EN.pdf
- French website with links to associated PDF and PPT resources https://www.partnershipagainstcancer.ca/fr/topics/framework-adolescents-young-adults/
- Full framework document in French: https://s22457.pcdn.co/wp-content/uploads/2019/10/AYA-Framework-2019-FR.pdf
On behalf of the Canadian Partnership Against Cancer, I want to take this opportunity to thank the AYA National Network (AYA NN) for contributing their time, effort and expertise towards the development and release of the Canadian Framework for the Care and Support of Adolescents and Young Adults with Cancer. Our collective vision is that all AYAs with cancer in Canada receive optimal, developmentally appropriate care and comprehensive survivorship support that lead to improved outcomes and high-quality life.
The Framework was developed in collaboration with the AYA NN, as well as input from international and national leaders and experts in cancer and in consultation with AYAs and their families. The Framework is available for download in English and French at the links above.
Over the coming years, we hope that the Framework will inspire future policy direction, investment and action to ensure Canada can meet new challenges in an evolving healthcare landscape, so that every young Canadian with cancer has access to the best practice and support they need to optimize their health, well-being and survival, and that it will facilitate meaningful participation across all aspects of life.
Implementation of the Framework requires leadership across Canada. Please help us share the Framework with as many people as possible, to mobilize our partners to action. Consider how you can champion the actions within the Framework at the individual, service and system level.
We have developed a variety of tools that we will continue to refine and post with the Framework online (available at links above):
- The Framework at a glance as a one page PDF
- A PDF document that summaries of the four strategic priorities and the four enabling platforms
- A brief and editable PPT slide presentation which contains key components of the Framework that can be edited/ customized for use
The actions within the Framework are intentionally broad so that your individual jurisdictions or organizations have flexibility to adapt your approach according to local context and systems capacity. The Framework is intended to complement and enhance national and local efforts, including related regional cancer plans and policies that improve outcomes for AYAs both in terms of the disease itself and the broader psychosocial and mental health and social challenges faced during care and survivorship.
Again, thank you for your leadership.
Chair, Adolescents and Young Adults National Network (AYA NN)
Defining a Cancer Research Vision | Définir une vision de la recherche sur le cancer | Participate in bilingual 15 minute survey by May 31st.
SURVEY LINK: https://cpacc.questionpro.ca/t/AB3unhAZB3upz8
La version française de ce courriel suit la version anglaise.
On behalf of the Canadian cancer research community, the Canadian Cancer Research Alliance (CCRA) in collaboration with Shift Health, has embarked on an exciting, highly engaging initiative to define a bold, 20-year vision for cancer research in Canada. The vision will help us to: describe what could be in the future for cancer research, align the collective research community toward common commitments and aspirations, and demonstrate what Canada needs to become if it is to continue to be an international leader in cancer research and deliver impact for patients. We would like to provide you with an opportunity to contribute to the vision by responding to a short survey.
Why should you contribute? As an individual with a vested interest in research or a member of the public who may directly or indirectly be affected by cancer, this is your opportunity to help define the future of cancer research in Canada. Your interest and participation in this initiative is greatly appreciated; we look forward to your contribution.
How can you contribute? Click on this link to access the online survey.
The survey should take no more than 15 minutes of your time. All responses will remain confidential.
Please direct any questions to email@example.com.
We would greatly appreciate it if you could also share this survey with your relevant networks. You may have already received a similar request to complete this survey and if so, please disregard this email.
Au nom de la communauté canadienne de la recherche sur le cancer, l’Alliance canadienne pour la recherche sur le cancer (ACRC) en collaboration avec Shift Health, a entrepris une initiative passionnante et très stimulante visant à définir une vision audacieuse de la recherche sur le cancer au Canada sur un horizon de 20 ans. Cette vision nous aidera à décrire l’avenir de la recherche sur le cancer, à harmoniser les engagements et les aspirations de l’ensemble de la communauté de la recherche et à démontrer ce que le Canada doit devenir s’il souhaite conserver son rôle de chef de file international dans la recherche sur le cancer et avoir des répercussions pour les patients. Nous souhaitons vous donner l’occasion de contribuer à façonner cette vision en répondant à un bref sondage.
Pourquoi apporter votre contribution? En tant que personne détenant un intérêt particulier pour la recherche ou en tant que membre du public pouvant être touché directement ou indirectement par le cancer, c’est votre chance de contribuer à définir l’avenir de la recherche sur le cancer au Canada. Votre intérêt et votre participation à cette initiative sont grandement appréciés. Nous nous réjouissons de votre contribution.
Comment pouvez-vous contribuer? Cliquez sur ce lien pour accéder le questionnaire en ligne.
Vous ne devriez pas avoir besoin de plus de 15 minutes pour répondre à ce sondage. Toutes les réponses demeureront confidentielles.
Veuillez poser vos questions à firstname.lastname@example.org.
Nous apprécierions beaucoup si vous pouviez partager cette questionnaire avec vos réseaux pertinents. Ci-vous avez déjà reçu une demande similaire de répondre à ce questionnaire, veuillez ignorer cet courrielle.
Comme vous le savez, le Canada est confronté à des défis actuels et nouveaux en matière de lutte contre le cancer, notamment le vieillissement de la population, qui impose des exigences accrues sur les services de soins, l’augmentation des coûts des soins de santé et les inégalités touchant les populations mal desservies et sous-représentées. La ministre fédérale de la Santé a demandé au Partenariat canadien contre le cancer d’actualiser la Stratégie canadienne de lutte contre le cancer. Celle-ci doit évoluer pour nous aider à répondre à ces besoins changeants et permettre au Canada de demeurer un chef de file en matière de prestation de soins liés au cancer de grande qualité.
Comment pouvez-vous participer?
Visitez le site strategiesurlecancer.ca pour présenter une soumission préparée par votre organisation en réponse au document de travail et pour participer à titre personnel au sondage Livre de choixMC.
Adressez-vous à notre équipe pour leur faire part de vos histoires, de vos expériences et de vos priorités en tant que membre des Premières Nations, des Inuits et des Métis.
Partagez ce message avec vos collègues, votre famille et vos amis, et encouragez-les à participer.
Votre opinion et votre expertise sont essentielles à l’avancement de la Stratégie canadienne de lutte contre le cancer, et nous vous remercions de votre intérêt et de votre participation. En mai 2019, nous ferons part à la ministre de la Santé des points de vue exprimés partout au pays. Pour toute question supplémentaire, veuillez envoyer un courriel à email@example.com.
Cindy Morton, PDG
Partenariat canadien contre le cancer
Restez en contact
Vous souhaitez être tenu au courant des progrès de l’actualisation de la Stratégie canadienne de lutte contre le cancer? Inscrivez-vous pour recevoir les dernières nouvelles.
As you know, Canada is facing ongoing and new challenges in cancer control including an aging population that places increased demands on care services, rising healthcare costs, and inequities for underserved and underrepresented populations. The federal Minister of Health has asked the Canadian Partnership Against Cancer to refresh the Canadian Strategy for Cancer Control. The Strategy needs to evolve to help us meet these changing needs and to ensure Canada remains a leader in delivering high-quality cancer care.
How can you be involved?
Engage with our Team to share your First Nations, Inuit and Métis stories, experiences and priorities
Share this message with your colleagues, family and friends and encourage them to participate
Your views and expertise are vital to help advance the Canadian Strategy for Cancer Control and we thank you for your interest and participation. Voices from across Canada will be shared with the Minister of Health in May 2019. Please direct any additional questions to firstname.lastname@example.org.
Cindy Morton, CEO
Canadian Partnership Against Cancer
Stay in Touch
The Canadian Partnership Against Cancer (CPAC) has developed a survey to gauge opinions on a proposed framework of care for young adult cancer treatment. If you are interested in giving your feedback, please:
- Go to: https://www.youngadultcancer.ca/ayann/
- Review the Draft Canadian Framework for AYAs with Cancer, also linked below
- Take the survey at https://cpacc.questionpro.ca/t/AB3unt0ZB3upNG
- Share the Framework broadly with operation managers, directors, clinicians, patients and family members, and anyone who you feel has a stake in AYA care
For more information, including FAQs, infographics and contact info, go to https://www.youngadultcancer.ca/ayann/
This report is available for download at: www.systemperformance.ca/reports/
The Canadian Partnership Against Cancer is pleased to share Adolescents and Young Adults with Cancer: A System Performance Report. This is the first time national data on the entire continuum of cancer control in adolescents and young adults have been reported.
Building on existing knowledge about cancer in this unique population, key findings include:
- physical, emotional and practical needs during and after cancer treatment
- challenges in oncofertility and resource availability to address fertility issues
- gaps in current research funding and availability of clinical trials
- more data required to better understand the needs of this group
We would like to acknowledge the Canadian Task Force on Adolescents and Young Adults with Cancer for their important contributions to this report.
Announcing the change-over of the AYA Task Force to the AYA National Network & a big thank you to the people behind the AYA Task Force
The Canadian Task Force on Adolescents and Young Adults with Cancer was formed in 2008, with funding from the Canadian Partnership Against Cancer (CPAC) and the support of C17. A task force is by definition a temporary working group and on March 31, 2017 the CPAC funding for the Task Force was completed. CPAC will continue to support AYA cancer patient and survivors through the new AYA National Network.
The Task Force and its many volunteers accomplished a great deal. See the last AYA Task Force Newsflash HERE for a summary of some of their accomplishments and a list of the many individuals behind them. In particular, the founding Chairs of the Task Force are to be applauded as the driving forces behind the Task Force: Ronnie Barr, Paul Rogers, and Brent Schacter. “The legacy of the Task Force will live on not just in the advances made for better care for AYA with cancer, but in the awareness raised and the many collaborations established.”
To better engage the Canadian healthcare system, a pan-Canadian AYA National Network is being established in April 2017. The AYA Network will be chaired by Dr. Paul Grundy, CPAC’s Expert Lead for Pediatric, Adolescent and Young Adult Oncology, and one of the AYA Task Force Chairs.
The goals of the Adolescent and Young Adult National Network are to:
- support patients’ and families’ engagement in decision-making processes by contributing to the knowledge, communication and awareness of the information that they need to make informed choices;
- identify gaps and key opportunities for improvement in the delivery of AYA programs in Canada;
- develop strategies to address these gaps;
- develop a set of national outcome performance indicators and benchmarks that build on previous work and accomplishments from provincial, national and internationally recognized approaches.
Remember to check systemperformance.ca on April 21 for the AYA Cancer System Performance Report!
A quick reminder that the data tracking sheets for Jan-Apr’2015 are due back at C17 on August 7.
Please note that the top 10 rows are data collected for CPAC. If you have questions, please contact Leah.
Dr. Joseph de Nanassy, MD FRCPC CCPE MCHM, Site Chief, Department of Laboratory Medicine & Division Chief, Anatomical Pathology, Children’s Hospital of Eastern Ontario, Ottawa, ON; Associate Professor, University of Ottawa; Member, POGO Pathology and Molecular Diagnostic Task Force
Date: Thursday, June 18, 2015
Time: 1:00 – 2:30 p.m. (60 minutes presentation; 30 minutes Q & A)
Audience: Pathologists, Pathology Fellows and Residents; Pediatric Oncologists, Surgeons, Radiation Oncologists; Clinical Research Associates (CRA’s). This webinar will provide expert advice for advancing pediatric oncology toward standardized reporting of pathology specimens; optimal pathology investigation; incremental clarity of clinical implications; and unprecedented analytics. Presented in partnership with the Canadian Partnership Against Cancer (CPAC)
As part of POGO’s long-range plan for childhood cancer in Ontario, a task force was initiated, co-chaired by Dr. Gino Somers, Head, Division of Pathology, Hospital for Sick Children, and Dr. David Malkin, POGO’s Medical Director, to determine reporting protocols currently in use, to review/ generate/ approve reporting templates and conventions, and to recommend future practice in Ontario. The task force identified and endorsed the pediatric College of American Pathologists’ (CAP) protocols and is recommending their adoption in Ontario.
- To review the CAP protocols related to Neuroblastoma and its use by pathologists specializing in pediatric oncology.
- To understand changes in the latest revision of the CAP cancer protocols and electronic cancer checklists.
Participation details: Please confirm your participation in this webinar at http://www.pogo.ca/education/synoptic-reporting/ to register online. For questions about registration, please contact Emily Bain at email@example.com or 416-592-1232 ext. 227. Webinar login details will be provided in advance of the event. Your confirmation by June 16 (at 5 p.m.) is suggested.