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Adolescents and Young Adults with Cancer System Report Available April 2017 (PDF and slide deck)

This report is available for download at: www.systemperformance.ca/reports/

The Canadian Partnership Against Cancer is pleased to share Adolescents and Young Adults with Cancer: A System Performance Report. This is the first time national data on the entire continuum of cancer control in adolescents and young adults have been reported.

 

Building on existing knowledge about cancer in this unique population, key findings include:

  • physical, emotional and practical needs during and after cancer treatment
  • challenges in oncofertility and resource availability to address fertility issues
  • gaps in current research funding and availability of clinical trials
  • more data required to better understand the needs of this group

We would like to acknowledge the Canadian Task Force on Adolescents and Young Adults with Cancer for their important contributions to this report.

Announcing the change-over of the AYA Task Force to the AYA National Network & a big thank you to the people behind the AYA Task Force

The Canadian Task Force on Adolescents and Young Adults with Cancer was formed in 2008, with funding from the Canadian Partnership Against Cancer (CPAC) and the support of C17. A task force is by definition a temporary working group and on March 31, 2017 the CPAC funding for the Task Force was completed. CPAC will continue to support AYA cancer patient and survivors through the new AYA National Network.

The Task Force and its many volunteers accomplished a great deal.  See the last AYA Task Force Newsflash HERE for a summary of some of their accomplishments and a list of the  many individuals behind them. In particular, the founding Chairs of the Task Force are to be applauded as the driving forces behind the Task Force: Ronnie Barr, Paul Rogers, and Brent Schacter. “The legacy of the Task Force will live on not just in the advances made for better care for AYA with cancer, but in the awareness raised and the many collaborations established.”

To better engage the Canadian healthcare system, a pan-Canadian AYA National Network is being established in April 2017. The AYA Network will be chaired by Dr. Paul Grundy, CPAC’s Expert Lead for Pediatric, Adolescent and Young Adult Oncology, and one of the AYA Task Force Chairs.

The goals of the Adolescent and Young Adult National Network are to:

  1. support patients’ and families’ engagement in decision-making processes by contributing to the knowledge, communication and awareness of the information that they need to make informed choices;
  2. identify gaps and key opportunities for improvement in the delivery of AYA programs in Canada;
  3. develop strategies to address these gaps;
  4. develop a set of national outcome performance indicators and benchmarks that build on previous work and accomplishments from provincial, national and internationally recognized approaches.

Remember to check systemperformance.ca on April 21 for the AYA Cancer System Performance Report!

CPAC Data and 3CTN Enrollment Due at C17 on Aug 7

A quick reminder that the data tracking sheets for Jan-Apr’2015 are due back at C17 on August 7.

Please note that the top 10 rows are data collected for CPAC.  If you have questions, please contact Leah.

POGO WEBINAR: Synoptic Pathology Reporting for Pediatric Patients with Neuroblastoma

Dr. Joseph de Nanassy, MD FRCPC CCPE MCHM, Site Chief, Department of Laboratory Medicine & Division Chief, Anatomical Pathology, Children’s Hospital of Eastern Ontario, Ottawa, ON; Associate Professor, University of Ottawa; Member, POGO Pathology and Molecular Diagnostic Task Force

Date:               Thursday, June 18, 2015

Time:              1:00 – 2:30 p.m. (60 minutes presentation; 30 minutes Q & A)

Audience:        Pathologists, Pathology Fellows and Residents; Pediatric Oncologists, Surgeons, Radiation Oncologists; Clinical Research Associates (CRA’s).  This webinar will provide expert advice for advancing pediatric oncology toward standardized reporting of pathology specimens; optimal pathology investigation; incremental clarity of clinical implications; and unprecedented analytics.  Presented in partnership with the Canadian Partnership Against Cancer (CPAC)

As part of POGO’s long-range plan for childhood cancer in Ontario, a task force was initiated, co-chaired by Dr. Gino Somers, Head, Division of Pathology, Hospital for Sick Children, and Dr. David Malkin, POGO’s Medical Director, to determine reporting protocols currently in use, to review/ generate/ approve reporting templates and conventions, and to recommend future practice in Ontario. The task force identified and endorsed the pediatric College of American Pathologists’ (CAP) protocols and is recommending their adoption in Ontario.

Learning Objectives:

  1. To review the CAP protocols related to Neuroblastoma and its use by pathologists specializing in pediatric oncology.
  2. To understand changes in the latest revision of the CAP cancer protocols and electronic cancer checklists.

Participation details: Please confirm your participation in this webinar at http://www.pogo.ca/education/synoptic-reporting/ to register online. For questions about registration, please contact Emily Bain at ebain@pogo.ca or 416-592-1232 ext. 227. Webinar login details will be provided in advance of the event. Your confirmation by June 16 (at 5 p.m.) is suggested.