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Webinar: Pain Community Research Priorities with Dr. Christine Chambers, 03-Oct-2018

This is your opportunity to contribute to the CIHR Institute of Musculoskeletal Health and Arthritis (IMHA) priorities for 2019-2022! Please join one of a series of Webinars being hosted by the Scientific Director of IMHA, Professor Karim Khan, and leaders of the IMHA research community. Here are the details for the webinar that will focus on priorities for Pain Research.

Pain Community Research Priorities with Dr. Christine Chambers
Wednesday, October 03, 2018 at NOON Eastern Time
Mark the time in your calendar!

*Click here to enter the webinar on the day*

 

Agenda for the session:

12:00 PM – 12:05 PM Introduction to the webinar – Tanya Gallant, IMHA Assistant Director
12:05 PM – 12:15 PM IMHA priority setting process. Why are we having webinars and what can you do to influence IMHA priorities? – Prof. Karim Khan, IMHA Scientific Director
12:15 PM – 12:30 PM Pain Research. What are the current priorities? What needs to be included? Dr. Christine Chambers
12:30 PM – 12:50 PM Open Forum – opportunity for those on the webinar to contribute via the webinar service and Twitter.
12:50 PM – 12:59 PM Close of the webinar and next steps

If you can’t make it live, we will make the recording available afterwards transcribed into English and French. Use this email address – imha-iala@cihr-irsc.gc.ca – to send in your contributions until Friday, October 19, 2018.

For more on IMHA and its 2014-2018 priorities, see this link: http://www.cihr-irsc.gc.ca/e/27024.html

Webinars will be scheduled for each of our priority and research areas. If you’d like to be notified about our other webinars, please subscribe to our newsletter by emailing imha-iala@cihr-irsc.gc.ca.

Sincerely,

Christine T. Chambers, PhD RPsych
Institute Advisory Board (IAB) Member, CIHR IMHA

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Nous avons besoin de votre contribution. Ensemble nous pouvons faire une différence pour la douleur chez les enfants ! [French version of SKIP survey.]

Les membres de notre centre ont travaillé en étroite collaboration avec nos amis de l’Association canadienne des centres de santé pédiatriques (CAPHC) et plusieurs autres à travers le Canada et au-delà sur une proposition pour soutenir un nouveau réseau nommé « Solutions for Kids in Pain » (SKIP) qui signifie « Des solutions pour les enfants en douleur ».

Nous encourageons tous ceux qui ont un intérêt pour la gestion de la douleur chez les enfants de bien vouloir compléter ce sondage qui ne vous prendra que 5 minutes à remplir.

LIEN VERS LE SONDAGE :  https://surveys.dal.ca/opinio/s?s=45431

Nous utiliserons vos commentaires afin de développer un réseau qui améliorera la gestion de la douleur chez les enfants au Canada et ailleurs !

N’hésitez pas à partager cette publication dans vos réseaux également! Merci pour votre participation ! Vous pouvez également suivre nos progrès sur Twitter : @KidsinPain.

 

#PsBesoinDeFaireMal

 

 

Please considering supporting the “Solutions for Kids in Pain” (SKIP) NCE-KM application by participating in and sharing this short research survey. Open to all of pediatrics – researchers, trainees, administrators, lay persons & health professionals. (Christine Chambers, IWK and Doug Maynard, CAPHC)

See below for more information

SURVEY LINK [short 12 question/<5 minutes; closes 31-Aug-2018]: https://surveys.dal.ca/opinio/s?s=45231

POTENTIAL SURVEY PARTICIPANTS: Any person with an interest in children’s pain including researchers, research trainees, health professionals, administrators, policy makers, advocates, advocacy groups, educators, patients, parents, and caregivers.


SOLUTIONS FOR KIDS IN PAIN (SKIP) need your input. Together we can make a difference for children in pain!

Members of our Centre have been working closely with our friends at the Canadian Association of Paediatric Health Centres (CAPHC) and many others across Canada and beyond on a proposal to support a new network called “Solutions for Kids in Pain” (SKIP).

Anyone with an interest in children’s pain management is asked to please take 5 minutes (maximum) to complete the following 12-question online survey.

SURVEY LINK: https://surveys.dal.ca/opinio/s?s=45231

We’ll use your feedback to develop a network that will improve the way children’s pain is managed in Canada and beyond!

We have prepared the following social media posts suitable for sharing. A social media image suitable for distribution is attached should you wish to make your own posts.

Please follow SKIP and our progress on Twitter at: @KidsInPain https://twitter.com/KidsInPain

#ItDoesntHaveToHurt #Teamwork

Image may contain: one or more people and text

Help #KidsCancerPain by posting the attached flyer, and by sharing via the provided social media links. It could be worth $250 for one of your families and help combat kids cancer pain

Dear Friends and Colleagues:

We’d be so grateful if you could help us spread the word about our #KidsCancerPain post-campaign survey, which is only open for less than 2 more weeks (the last day is October 10th).  This is a critical component of the evaluation of our Canadian Cancer Society funded Knowledge to Action grant, and as of yesterday we have only had about 20 parents complete the survey, and we need 100.

If you know of a parent or caregiver of a child with cancer, who may have seen ANY of our #KidsCancerPain content over the past year….please have them complete our survey! They could win 1 of 3 VISA gift cards valued at $250 (CDN)!

The survey link is: www.surveymonkey.com/r/KidsCancerPain

If you could please do any or all of the following:

  1. forwarding to applicable parents/caregivers
  2. Print and post the image/poster (below) where it will be seen by parents/caregivers.  Download the file KidsCancerPainImagewLink.
  3. Share this tweet: https://twitter.com/DrCChambers/status/910900302831898624
  4. Share this Facebook post: https://www.facebook.com/permalink.php?story_fbid=943085052498840&id=194222534051766&substory_index=0
  5. Or create your own social media post using the survey link above and the attached image, along with our hashtag #KidsCancerPain

 

Thank you!

Christine, on behalf of the #KidsCancerPain team

Watch Christine Chambers and Conrad Fernandez on Global TV’s Aug 5 story about #KidsCancerPain

Global TV story. Global and TV  and Jill Chappelle did a great piece on #KidsCancerPain that included Christine Chambers, Conrad Fernandex, students and staff involved, and Nichole Poplar (a member of the #KidsCancerPain parent panel) and her son Connor. http://globalnews.ca/video/2867672/researchers-in-halifax-use-social-media-to-manage-pain-in-child-cancer-patients/

Need an easy way to direct new patients/families to the valuable resource #KidsCancerPain? Hand-outs have been sent to your division head! Banners available for outreach events.

Outreach to parents of newly diagnosed patients.  #KidsCancerPain wants to make sure they are reaching newly diagnosed families, and not just those who are already well connected with different cancer organizations and groups. They are sending fliers and information about the project to all Canadian children’s hospitals and oncology division heads and to major US pediatric cancer centres (with a letter from Christine Chambers). Please contact #KidsCancerPain  if you have more ideas or suggestions on how they can reach this important group.

Table Banners, Pull Up Banners and Posters.  #KidsCancerPain has banners, posters and flyers to be used whenever possible. Contact #KidsCancerPain for more information.

 

#KidsCancerPain Thunderclap Reaches 1.7 Million People https://youtu.be/2ER_jjzhjrc

Thunderclap: #KidsCancerPainThank you to everyone who took part in the #KidsCancerPain Thunderclap on July 27. Your sharing had a reach of over 1.7 MILLION people!

How can you participate now?

Watch this quick video to learn more about our #KidsCancerPain campaign: https://m.youtube.com/watch?v=2ER_jjzhjrc&feature=youtu.be

Read the first blog here: https://cancerkn.com/together-we-are-going-to-be-making-cancer-less-painful-for-kids/

Then continue to follow #KidsCancerPain over the next 12 month through social media and on our webpage as we bring you the very best, cutting-edge research evidence about children’s cancer pain – what causes it, common myths, how to assess it, how to treat it, and more!

Go to http://thndr.me/M9iXxF before July 27 and add your support to the #KidsCancerPain THUNDERCLAP – it only take a minute (or less) and each supporter will amplify the visibility of their social media launch on July 27 – invite your friends, post and tweet.

We are planning a social media Thunderclap!

A Thunderclap is an organized social media event that allows a single message to be mass shared, flash-mob style, so it is heard above the noise online, makes a statement, and gets noticed. By having everyone share the same message at the same time, Thunderclap helps to create action and awareness.

Please join our #KidsCancerPain Thunderclap being organized for July 27th.

It’s easy to join! Just click on this link: http://thndr.me/M9iXxF

You can choose to be a part of the #KidsCancerPain Thunderclap on Twitter, Facebook, or both! Just add your name to the Thunderclap and that’s it – now you will be part of our message that will be amplified and help us reach hundreds of thousands of people. The link will allow you to automatically schedule a tweet to be posted at the designated date (July 27th) and time (9 pm Eastern) – You don’t need to remember or be online to do it then! Thunderclap posts it for you!!

Thunderclap works best when everyone works together. We need a minimum of 100 people to sign up or the Thunderclap won’t work. Please join us and help spread the word in your networks to ask others to sign up before July 27th.

We would like to extend our sincere thanks for your support of the #KidsCancerPain parent survey. Over 250 parents have completed the survey so far! The responses will be used to shape the focus of our campaign content over the coming year. The survey will remain open until 9 pm (Eastern) on July 20th, so there is still time left for more parents to participate.

But we need your help again… We are planning something *SPECIAL* to help direct attention to our first #KidsCancerPain content (blog & video) that will go live on the new #KidsCancerPain section of the Cancer Knowledge Network webpage on July 27th.

 More questions about Thunderclap? Watch a short explanatory video: https://www.thunderclap.it/about.  It only takes 5 minutes to join and it’s completely safe. When you sign up you are simply allowing the site to post one single tweet or Facebook post on your behalf and will only use your information from your friend lists to calculate your reach. Then on the same day, at the exact same time, everyone who has joined will have the same message posted causing a ripple over social media and reaching people far and wide.

 Please help us recruit others to join us by forwarding this email, tweeting, or posting about the #KidsCancerPain Thunderclap on Facebook.:

 

Thank you!

 

Christine, on behalf of the #KidsCancerPain team

There is a THUNDERCLAP coming. If you have a Twitter account get ready to support #KidsCancerPain by joining – instructions next week.

Not sure what a Thunderclap even is?  Watch https://www.thunderclap.it/about

#KidsCancerPain will be launching their first #KidsCancerPain content on July 27th, including the 1st blog and video, featured on the new #KidsCancerPain landing page on the CKN website. In order to help draw attention to this content launch, during the week leading up to the 27th (so from July 20th to 27th) we will be organizing a Twitter Thunderclap! More information and instructions on this will follow, but briefly a Twitter Thunderclap allows a single message to be mass-shared, flash mob-style, so it rises above the noise of your social networks. These can be a lot of fun, and very impactful, so we will be working hard to organize a great Thunderclap and hope we can count on each of you to be a part of it and share.

#KidsCancerPain Survey: 1 week left for parents and caregivers to contribute. Please circulate/post.

Over 200 parents/caregivers have participated so far – thank you! Please continue to spread the word about the campaign & survey (which is open for until July 20).  The survey link is: https://www.surveymonkey.com/r/KidsCancerPain and can be easily found by searching for #KidsCancerPain and survey.

Share and retweet in your networks and over social media to help promote the survey and the resource/campaign.

Contact the researchers (jennifera.parker (at) iwk.nshealth.ca) for campaign materials for distribution; click here for a survey invitation poster, campaign poster, and samples of digital campaign files can be found here and here.

 

What is #KidsCancerPain?

Over the next 12 months, #KidsCancerPain will be bringing parents the very best, cutting-edge research evidence about children’s cancer pain – what causes it, how to assess it, how to treat it, common myths, and more! This information will be shared with parents in a series of blogs, videos, images, Facebook posts, and Twitter chats, all posted and shared on the Cancer Knowledge Network website (https://cancerkn.com/) and social media. They will be studying the reach of the campaign and its impact on parents.

You will be learning more about #KidsCancerPain, but in the meanwhile these researchers are asking you to share and promote in your networks and on social media. The major focus right now is getting as many parents/caregivers who have a child with cancer currently in treatment, remission or who is a survivor to complete the survey. The survey takes 10-15 min to complete and there is a chance to win 1 of 3 $250 Visa gift cards. This is a critical component of the evaluation of the campaign.