Inform Patients and Families about the Canadian Retinoblastoma Research Registry – see post for resource downloads and contact information
Adults affected by retinoblastoma (e.g., survivors and immediate family of those diagnosed with retinoblastoma) are invited to join the Canadian Retinoblastoma Research Registry.
The purpose of the registry is to:
- Share research results with retinoblastoma survivors and their families;
- Include a large and diverse group of retinoblastoma survivors and their families in research; and
- Promote research that is created and lead by retinoblastoma survivors and their families.
- Share information about the Canadian Retinoblastoma Research Registry with your patients and their families (view and download advertisements for the registry or email firstname.lastname@example.org for hard copies).
- Request access to the list of registrants for your retinoblastoma research.
This study is part of the Canadian Retinoblastoma Patient Engagement Strategy led by Dr. Helen Dimaras (Scientist, SickKids). For more information visit our website or email email@example.com.