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Please considering supporting the “Solutions for Kids in Pain” (SKIP) NCE-KM application by participating in and sharing this short research survey. Open to all of pediatrics – researchers, trainees, administrators, lay persons & health professionals. (Christine Chambers, IWK and Doug Maynard, CAPHC)

See below for more information

SURVEY LINK [short 12 question/<5 minutes; closes 31-Aug-2018]: https://surveys.dal.ca/opinio/s?s=45231

POTENTIAL SURVEY PARTICIPANTS: Any person with an interest in children’s pain including researchers, research trainees, health professionals, administrators, policy makers, advocates, advocacy groups, educators, patients, parents, and caregivers.


SOLUTIONS FOR KIDS IN PAIN (SKIP) need your input. Together we can make a difference for children in pain!

Members of our Centre have been working closely with our friends at the Canadian Association of Paediatric Health Centres (CAPHC) and many others across Canada and beyond on a proposal to support a new network called “Solutions for Kids in Pain” (SKIP).

Anyone with an interest in children’s pain management is asked to please take 5 minutes (maximum) to complete the following 12-question online survey.

SURVEY LINK: https://surveys.dal.ca/opinio/s?s=45231

We’ll use your feedback to develop a network that will improve the way children’s pain is managed in Canada and beyond!

We have prepared the following social media posts suitable for sharing. A social media image suitable for distribution is attached should you wish to make your own posts.

Please follow SKIP and our progress on Twitter at: @KidsInPain https://twitter.com/KidsInPain

#ItDoesntHaveToHurt #Teamwork

Image may contain: one or more people and text
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Help shape palliative care in Canada – NEW discussion topic: Special Populations / Influencez l’avenir des soins palliatifs au Canada – NOUVEAU sujet de discussion : Populations particulières

French text follows

Health Canada is holding online public consultations on palliative care in Canada. This consultation is the first step in developing a national framework for palliative care. This is your chance to help shape palliative care in Canada.

The special populations topic for Health Canada’s online public consultations to inform the development of a national framework for palliative care is now open for discussion. ‎Please take a few minutes to log in and share your thoughts on the following sections confidentially:

Special populations include: Indigenous people, immigrants and refugees, children, adolescents and young adults, people with disabilities, LGBTQ2 and others.

We recently posted a comment in section 4.2 Increasing Access. It would be greatly appreciated if you would “like” and hit reply to share your thoughts.

Share your stories, helpful tools, ideas. Your participation shows government that palliative care is a priority to Canadians.

Please share this invitation with your colleagues, friends and families and encourage them to participate.

As always, we appreciate your partnership and support.

Warmest regards,

Marissa Ambalina, BCom (Hons)

Communications Specialist/ Spécialiste en communications
marissa ( at ) virtualhospice.ca
www.virtualhospice.ca | www.portailpalliatif.ca

 


 

Santé Canada vous invite à participer à une consultation publique en ligne sur les soins palliatifs au Canada. Cette consultation constitue la première étape de l’élaboration d’un cadre pour les soins palliatifs. Voici votre chance d’influencer l’avenir des soins palliatifs au Canada.

 

Le thème « Populations particulières » est maintenant ouvert à la discussion dans le cadre des consultations publiques en ligne de Santé Canada en vue de l’élaboration d’un cadre national pour les soins palliatifs. Nous vous invitons à prendre quelques minutes pour vous connecter et vous exprimer sur les sujets suivants en toute confidentialité :

Populations particulières s’entend de plusieurs groupes, dont les peuples autochtones, les immigrants et les réfugiés, les enfants, les adolescents, les jeunes adultes, les personnes ayant des déficiences et les LGBTQ2.

Nous venons de publier un commentaire dans la section 4.2 – Amélioration de l’accès. Nous vous saurions gré de bien vouloir « aimer » ce commentaire et y répondre pour partager vos idées.

C’est le bon moment de partager vos histoires, de faire connaître des outils et d’exposer vos idées. Votre participation montrera au gouvernement que les soins palliatifs sont une priorité pour les Canadiens.

N’hésitez pas à transmettre cette invitation à vos collègues ainsi qu’à vos proches et amis pour les encourager à participer.

Comme toujours, nous vous remercions de votre collaboration et de votre soutien.

 

Cordialement,

Marissa Ambalina, BCom (Hons)

Communications Specialist/ Spécialiste en communications
marissa ( at ) virtualhospice.ca
www.virtualhospice.ca | www.portailpalliatif.ca

C17 Education Rounds April 6: User-Centered Design Approach to the Development and Feasibility Testing of a Smartphone App to Support Real-Time Pain Management for Adolescents with Cancer

Lindsay Jibb, RN, MSc, PhD Candidate, The Hospital for Sick Children

Wednesday April 6, 2016, 12:00 – 13:00 MST

Site registration cut-off date is April 1, 2016.  To obtain credit certification, please make sure you complete and submit your evaluation form.

 

Objectives:

  1. To review the case for novel means to manage pain in the adolescent with cancer population.
  2. To present the user-centered approach used to develop the Pain Squad+ real-time cancer pain self-management app for adolescents with cancer.
  3. To discuss the implementation and preliminary effectiveness results from a longitudinal Pain Squad+ feasibility study with adolescents with cancer.

This event will be recorded by AHS Digital Media Services and will be available to view after the presentation date. The link will be sent by e-mail for those who cannot attend on the date of the videoconference.

Telehealth host site: Stollery Children’s Hospital

Telehealth Registration:  Book a room with your institution’s Videoconference Dept. and then follow instructions in the e-mail included with this poster (see e-mail below) in order to register online with Alberta Health Services @ www.vcscheduler.ca/ahs
If you need help please contact our Telehealth team at edm.telehealthscheduling@albertahealthservices.ca

Survey for Feedback on Pediatric Oncology Exercise Manual

The Health and Wellness Lab at the University of Calgary is seeking feedback on the Pediatric Oncology Exercise Manual (POEM) that they have developed.  This manual was developed by 27 leading researchers in the area of pediatric oncology in an attempt to create a resource for families, researchers, health care and fitness professionals working within pediatric oncology.

To download the professional version go the the following link and click on the green arrow next to preview PEOM: www.ucalgary.ca/poem/about-pro

The survey for the professional version can be found at:  www.ucalgary.ca/poem/baseline-survey-professionals

To download the family version go the the following link and click on the green arrow next to preview PEOM: www.ucalgary.ca/poem/about-family

The survey for the professional version can be found at:  www.ucalgary.ca/poem/baseline-survey-family